Talking to Your Doctor
It can be helpful to keep track of your recent attacks and bring that information to your next appointment.
Also, being prepared with a list of questions can ensure you cover everything you want to discuss.
Questions to Ask Your Doctor
Managing HAE
- How is my current treatment plan intended to help manage my HAE attacks?
- What are the risks of delaying treatment of an attack?
- Do different medications treat my disease differently?
- If I’m still having attacks and my treatment is a burden, is my HAE well managed?
Understanding HAE
- What is bradykinin and what is its role in HAE?
- What are some attack triggers and warning signs that other patients experience?
- Where can I go to stay up to date on the latest developments in HAE?
- The new WAO guidelines say that the goal for HAE is complete disease control plus improvement in health-related quality of life. What does that mean for me?
Tracking Your Attacks
Tracking Your Attacks
HAE TrackR app from HAE International
Record your treatment
Track attack development and improvements
Set reminders for preventive treatment
The third-party resource cited above is for the reader’s information only. Pharvaris does not endorse and is not responsible for the content included in this resource.
Keep an Attack Diary That Includes:
Keep an Attack Diary That Includes:
- Date of attack
- Time and place symptoms began
- Attack intensity (low, medium, high)
- How long did the attack last?
- Location of swelling (hands, feet, stomach, face, etc.)
- Type of trigger (if known)
- Was this attack similar to or different from past attacks?
HAE, hereditary angioedema; WAO, World Allergy Organization.
Hear from real patients with HAE sharing their challenges in managing the disease.
