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Deflate-HCP

For healthcare professionals
For people with HAE and caregivers

Discover a World of Resources 

For healthcare providers, patients with HAE & caregivers

HAE Resources

HAE Resources

Angioedema Centers of Reference and Excellence (ACARE)

The ACARE program is a joint initiative by GA²LEN (Global Allergy and Asthma Excellence Network) and HAEi (Hereditary Angioedema International) with the aim of developing and accrediting an interactive network of centers of reference and excellence in angioedema management.

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Hereditary Angioedema Association (HAEA)

A nonprofit advocacy organization serving people with HAE and their caregivers. Through a passionate commitment to the HAE community, they offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life.

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HAE International (HAEi)

A global nonprofit network of patient associations dedicated to improving the lives of people with HAE. They are a group of compassionate patients with HAE and caregivers who make it their life’s work to raise awareness of HAE, improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE.
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HAEi LEAP

An educational program, developed by HAEi, that allows young people to learn new skills and develop as individuals and advocates.

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National Organization for Rare Disorders (NORD)

A comprehensive resource for people with a rare disease and their caregivers, including rare disease facts and statistics, information on living with a rare disease, mentoring organizations, improving clinical care, and community support.

NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.

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The third-party resources cited above are for the reader’s information only. Pharvaris does not endorse and is not responsible for the content included in these resources.

HAE Type 1 and Type 2 Are Now
HAE-C1-INH.

The 2025 WAO guidelines have retired the type 1 and type 2 classifications of HAE with C1-inhibitor deficiency. Both presentations, whether driven by reduced C1-INH levels or dysfunctional C1-INH protein, are now unified under a single designation: HAE-C1-INH. This update reflects a deeper understanding of the shared pathophysiology and management principles, and eliminates a distinction with limited clinical utility.

Read the new WAO guidelines

HAE Resources & Downloads

HAE Resources & Downloads

For HCPs: 
Balancing the Burden

What people with HAE want you to know

Download now
For people with HAE and their caregivers

What every family needs to know: The Burden and Trade-Offs of Life with HAE

Download now
The Guide to Women
with HAE
Download “Women with HAE” from haea.org
Read now
C1-INH, C1-inhibitor; HAE, hereditary angioedema; HAE-C1-INH, hereditary angioedema due to C1-INH deficiency; WAO, World Allergy Organization.

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