Four real people with HAE. Four unique stories. deflate HAE Together

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People representing different HAE patient stories
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Andjela

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Emma

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Gabby

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Jamie

Real people living with HAE.

Discover how HAE and its management burdens their lives

People representing different HAE patient stories

Real people living with HAE.

Andjela profile icon

Andjela

Married with two sons, trauma nurse,
diagnosed with HAE at age 27
Opening quote
Some people didn’t believe I had a disease; they thought I was exaggerating my pain or that it was all in my head.1
Closing quote
Emma profile icon

Emma

Medical school student,
diagnosed with HAE at age 24
Opening quote
If I am starting to have a swell, I tend to stay home. I just don’t like to be seen in public because it’s not something I can hide.1
Closing quote
Gabby profile icon

Gabby

Recently engaged,
diagnosed with HAE at age eight
Opening quote
But when I do get upset is when I can’t get an IV started. I will stick myself over and over and I just try to stay calm, but sometimes, if my hand is swelling, I just can’t do it.1
Closing quote
Jamie profile icon

Jamie

Married with three sons, two have HAE,
language arts teacher, diagnosed at age 20
Opening quote
HAE has disrupted my job, my friendships, and my everyday life.1
Closing quote
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Burden of HAE Management

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Reference

  1. Data on file, Pharvaris.

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Emma with balloon

Real person living with HAE.

Don't miss what's next in HAE