DISCOVER A WORLD OF RESOURCES FOR YOU AND PEOPLE WITH HAE
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HAE Resources
ANGIOEDEMA CENTERS OF REFERENCE AND EXCELLENCE (ACARE)
acare-network.comThe ACARE program is a joint initiative by GA²LEN (Global Allergy and Asthma Excellence Network) and HAEi (Hereditary Angioedema International) with the aim of developing and accrediting an interactive network of centers of reference and excellence in angioedema management.
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HEREDITARY ANGIOEDEMA ASSOCIATION (HAEA)
HAEA.orgA non-profit advocacy organization serving people with HAE and their caregivers. Through a passionate commitment to the HAE community, they offer a wide variety of services and resources that further HAE education, clinical research, community engagement, access to medications, personalized support networks, and a wide range of services to help people living with HAE lead a normal life.
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HAE INTERNATIONAL (HAEi)
HAEi.orgA global non-profit network of patient associations dedicated to improving the lives of people with HAE. They are a group of compassionate HAE patients and caregivers who make it their life’s work to raise awareness of HAE, improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE.
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HAEi LEAP
youngsters.haei.org/leap-welcome-program/An educational program, developed by HAEi, that allows young people to learn new skills and develop as individuals and advocates.
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NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
rarediseases.org
A comprehensive resource for people with a rare disease and their caregivers, including rare disease facts and statistics, information on living with a rare disease, mentoring organizations, improving clinical care, and community support.
NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.
See the HAE glossary of key terms
Resources
Find more helpful resources, including
“The Guide to Women with HAE” at haea.org and
the downloadable HAE TrackR app at haei.org
The third-party resource cited above is for the reader’s information only. Pharvaris does not endorse and is not responsible for the content included in this resource.
Burden of HAE Management
