Real Stories.
Real Burdens Worth Recognizing.
Each story reveals something clinicians need to know about managing HAE.
Select a real person living with HAE to see the cost of compromise
Select a real person living with HAE to see the cost of compromise
GABBY
Treatment troubles
JAMIE
Parenting past the panic
ANDJELA
Having to prove the pain
EMMA
Sidelined by swelling
KEVIN
Unsettled by the uncertainty
GABBY
Impact of Treatment Logistics
Recently engaged, diagnosed with HAE at age eight
If I had a treatment that would be easily administered, that day could have been different.
Learn about Gabby’s treatment troubles
JAMIE
HAE as a Family Disease
Language arts teacher, diagnosed at age 20,
married with three sons, two of whom have HAE
HAE has disrupted my job, my friendships, and my everyday life.
See how Jamie parents past the panic
ANDJELA
Having to Prove The Pain
Married with two sons, trauma nurse, diagnosed with HAE at age 27
Some people didn’t believe I had a disease; they thought I was exaggerating my pain or that it
was all in my head.
See why Andjela often has to prove the pain
EMMA
Uncertainty as Reality
Medical school student, diagnosed with HAE at age 24
There’s always just a feeling of dread, of just waiting. How quickly is it going to progress in the time it takes to work?
See how Emma is sidelined by swelling
KEVIN
Dealing with disruptions
Recently engaged, diagnosed with HAE in early 20s
One of the biggest challenges of having HAE is there are times where I may have to cancel plans last minute. I can’t control when and where I get my attacks.
See how Kevin is unsettled by the uncertainty
HAE, hereditary angioedema.
Discover helpful resources for HCPs.
Join us in finding a path beyond the burdens of HAE.
